A Correct Diagnosis

I saw this graphic on twitter from Dr. Margare Aranda and thought this pretty much sums up my #currentsituation so I wanted share. Sometimes you really have to fight for your diagnosis.

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I wrote about trying to get a diagnosis for this chronic pain I have had off and on for a few years now in my last very lengthy blog post. Tests, procedures, scans, second opinions, third opinions. I have one more appointment tomorrow morning. My binder is ready with all of my recent exams. My fingers are crossed. And I have hope.

“At the end of the day all you need is hope and strength. Hope that it will get better, and strength to hold on until it does.” ~ Jazmin Whitmore

I think for many people suffering in pain, just knowing they aren’t crazy and that there is some logical, medical explanation for what they are experiencing gives a profound sense of relief and peace of mind. Getting to the correct diagnosis should get you on the proper road to recovery. As Gandhi said, it’s 3/4 of the remedy!

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Have you had challenges getting a chronic condition diagnosed? Do you have any lessons learned that you can share?

Cheers!

Cynthia

Shining a Light on Fibromyalgia

Every day is Awareness Day for those who suffer from fibromyalgia.

Every year May 12th has been designated as “Fibromyalgia Awareness Day” to shine a light on this invisible illness. Most of us who suffer from this chronic condition feel that every day is our awareness day, as we often have to explain what it is to people. Trust me when I say it is more than what you see in the pharmaceutical commercials on TV.

Shine-a-purple-light-wide Continue reading “Shining a Light on Fibromyalgia”

Fibromyalgia, Courage, and Strength

This quote popped up on my weekly planner page for today, but it is one I have read before.

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This embodies what it’s like to have fibromyalgia for me. Having the courage to push through the pain on a daily basis, even when you feel like you have no strength left to do so. In the 16+ years since my diagnosis, I have had plenty of days where getting out of bed and walking across the floor were a challenge. When every step you take radiates pain through your body, and you wonder: Why am I doing this? Why don’t I just crawl back in bed? It would be so much easily to just curl up under the blankets with a heating pad than to try to work out, shower, and get ready to go to work. Continue reading “Fibromyalgia, Courage, and Strength”

Curse the Pigeon Pose

This post is brought to you by the today’s Daily Post prompt. Transmogrify means “to change in appearance or form, especially strangely or grotesquely; transform.” So consider the rather awkward and “hurts-so-good” yoga pose called the Pigeon Pose as a “transmogrifier” for your lower back and hip pain. No, really. Trust me.

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King Pigeon Pose

I hurt every dang day of my life. The location and extent of the pain changes, but I cannot remember a day without pain as of late. Bouncing out of bed is no longer an option. I am slow to move as I am stiff and it hurts to straighten up and walk in the mornings. Some days the pain is all over, some days it’s more pronounced in the neck and shoulders, others it’s the lower back and/or one leg or another. This is not meant to be a pity party, but more of an explanation, and what I do to relieve my pain. Continue reading “Curse the Pigeon Pose”

A Good Laugh and a Long Sleep

There’s an Irish proverb that goes, “A good laugh and a long sleep are the best cures in the doctor’s book.”

It’s no secret that we live in a world of always-on, information overload. I started this post earlier this week while I was out of town for work, as I was caught up in a self-imposed state of sleep deprivation. Easy to do because: 1) I don’t sleep well when not in my own bed and 2) I am not receiving the evil eye from my husband for spending too much time on my phone or tablet. But yet thanks to our ‘smart’ devices, our attention span is now worse than a goldfish. Smart devices making us dumb and taking us away from precious sleep, both directly and indirectly. So what can we do?

Continue reading “A Good Laugh and a Long Sleep”

Fibromyalgia – A Real Pain in the Neck

Ten of the eighteen trigger points common with FMS are concentrated in the neck and shoulders, making neck pain a normal occurrence for fibro-sufferers.

I once spent over a year trying to diagnose some symptoms I was having. Living with fibromyalgia, it is sometimes difficult to differentiate FMS aches and pains from something different. I have never been one to go to the doctor much, and do believe we know our bodies best and we must be diligent in finding what works for ourselves. So when I know something is really wrong, it is up to me to find the right doctor to work with me for a diagnosis.

Continue reading “Fibromyalgia – A Real Pain in the Neck”

The Other “F” Word

Quick thoughts for #FibroFriday…

I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure.  All of these have become the other “F” words  to me. I try to live by the power of positive thinking, but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt, and oftentimes feel like a failure because I can’t do the things I want to do.

Continue reading “The Other “F” Word”