Every day is Awareness Day for those who suffer from fibromyalgia.
Every year May 12th has been designated as “Fibromyalgia Awareness Day” to shine a light on this invisible illness. Most of us who suffer from this chronic condition feel that every day is our awareness day, as we often have to explain what it is to people. Trust me when I say it is more than what you see in the pharmaceutical commercials on TV.
This quote popped up on my weekly planner page for today, but it is one I have read before.
This embodies what it’s like to have fibromyalgia for me. Having the courage to push through the pain on a daily basis, even when you feel like you have no strength left to do so. In the 16+ years since my diagnosis, I have had plenty of days where getting out of bed and walking across the floor were a challenge. When every step you take radiates pain through your body, and you wonder: Why am I doing this? Why don’t I just crawl back in bed? It would be so much easily to just curl up under the blankets with a heating pad than to try to work out, shower, and get ready to go to work.Continue reading “Fibromyalgia, Courage, and Strength”
This post is brought to you by the today’s Daily Post prompt. Transmogrify means “to change in appearance or form, especially strangely or grotesquely; transform.” So consider the rather awkward and “hurts-so-good” yoga pose called the Pigeon Pose as a “transmogrifier” for your lower back and hip pain. No, really. Trust me.
I hurt every dang day of my life. The location and extent of the pain changes, but I cannot remember a day without pain as of late. Bouncing out of bed is no longer an option. I am slow to move as I am stiff and it hurts to straighten up and walk in the mornings. Some days the pain is all over, some days it’s more pronounced in the neck and shoulders, others it’s the lower back and/or one leg or another. This is not meant to be a pity party, but more of an explanation, and what I do to relieve my pain. Continue reading “Curse the Pigeon Pose”
There’s an Irish proverb that goes, “A good laugh and a long sleep are the best cures in the doctor’s book.”
It’s no secret that we live in a world of always-on, information overload. I started this post earlier this week while I was out of town for work, as I was caught up in a self-imposed state of sleep deprivation. Easy to do because: 1) I don’t sleep well when not in my own bed and 2) I am not receiving the evil eye from my husband for spending too much time on my phone or tablet. But yet thanks to our ‘smart’ devices, our attention span is now worse than a goldfish. Smart devices making us dumb and taking us away from precious sleep, both directly and indirectly. So what can we do?
Ten of the eighteen trigger points common with FMS are concentrated in the neck and shoulders, making neck pain a normal occurrence for fibro-sufferers.
I once spent over a year trying to diagnose some symptoms I was having. Living with fibromyalgia, it is sometimes difficult to differentiate FMS aches and pains from something different. I have never been one to go to the doctor much, and do believe we know our bodies best and we must be diligent in finding what works for ourselves. So when I know something is really wrong, it is up to me to find the right doctor to work with me for a diagnosis.
I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure. All of these have become the other “F” words to me. I try to live by the power of positive thinking, but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt, and oftentimes feel like a failure because I can’t do the things I want to do.
For those of us who live with fibromyalgia, we are painfully aware of it everyday. But this year May 12 has been designated to educate others. The theme this year is “Your Voice Matters” to call attention to the fact that everyone has a say in education, awareness, and making changes to help those who suffer from chronic pain.
What it Is
As I described in an earlier post, extreme fatigue, sleeping issues, and that “I-just-got-run-over-by-a-Mack-truck” feeling are the most prevalent symptoms for me. Other common symptoms of fibromyalgia include:
Constant dull ache on both sides of the body and above and below the waist
Sounds great, huh? Lucky me, as I have both! Diagnosed with Fibromyalgia in 2000 and with Osteoporosis in 2015. I know and live with chronic pain, but try my best not to let it get me down or slow me down. And then there are all of the other weird ailments that get lumped in with this condition, for lack of any other explanation. There’s a very good list by Sophie at Fibro Diaries that lists 100 different symptoms. I have probably had most of them at one point.
So in the spirit of helping with awareness, here are some other websites and bloggers I like, that write about life with fibromyalgia:
Dr. Murphree’s site has good information on the condition; listen to one of his conference calls
Read my earlier post of how I cope – healthy lifestyle choices are the best methods for me and I feel it when I make bad eating choices or have high stress levels
My Voice Matters
Hopefully I have provided *a little* awareness on this “invisible” condition. So the next time I seem a little grumpy or am moving slowly, it’s probably because when I crawled out of bed and kicked fibromyalgia in the butt that morning, it kicked back.
Do you have any good resources for fibromyaglia or coping with chronic pain to share?