Letter Board No. 20

Just a quick one for a Monday morning. Anyone else feel like the weekends just aren’t long enough? 🙋🏻‍♀️ My to-do list is overflowing lately and there just isn’t enough time to get it all done AND relax a bit on the weekends. Sigh….

Perhaps it’s the exhaustion and pain (fibro flare) that I am still suffering. But this describes my Monday mood…. More coffee, please. Extra shot.

Nonetheless, I hope you all have a wonderful week! Do something wonderful for yourself!! Self-care is selfless, not selfish. (More on that later.) I am taking Friday off to knock off some things from that list. 😉 But first, coffee.

Cheers!

Cynthia

Letter Board No. 17

“Never let the things you can’t do, stop you from doing what you can.”

Fibromyalgia Awareness Day was yesterday, but it’s also recognized for the entire month of May. Fibromyalgia Syndrome is marked by widespread musculoskeletal pain, fatigue, and sleeping problems. The result of this is often that those of us with it are a shell of our former selves, too fatigued or in pain to carry on the life we once led.

While running marathons may no longer be in our wheelhouse, let’s not forget there are still plenty of things we can do and enjoy in life. We may have to adapt or take things in moderation, but that doesn’t mean we have to live a life of loneliness and isolation.

“Never let the things you can’t do stop you from doing what you can.”

Ronald Reagan

Just like Ferris Bueller says at the end of the movie, “Life moves pretty fast. If you don’t stop and look around once in awhile, you could miss it.” So my fellow fibrowarriors, my hope for you is that you find something you can do so you can enjoy the life you have.

Cheers!

Cynthia

Fibromyalgia Awareness Day: Life with Fibromyalgia

May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.

While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.

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Finding Joy with Fibromyalgia

Four simple steps to finding joy

Living with chronic condition like Fibromyalgia can be anything but joyful most days of the week. You are in pain, tired, and can be experiencing a myriad of other symptoms at any one time. And you often feel alone.

Then there’s the fact that you usually have to explain to people just what the heck Fibromyalgia Syndrome is and the fact that there is no good understanding of what causes it, thus there’s no cure as of yet. This alone can spin you into a life of social separation and loneliness.


It is widely believed that artist Frida Kahlo also would have been diagnosed with Fibromyalgia, if there had been that diagnosis during her time. Her art depicts chronic pain and her diaries reflect a life filled with physical and emotional pain. Yet, she continued to do what she loved, which was to paint, and toward the end of her life she turned her attention to capturing everyday existence.

“I used to think I was the strangest person in the world but then I thought there are so many people in the world, there must be someone just like me who feels bizarre and flawed in the same ways I do. I would imagine her, and imagine that she must be out there thinking of me, too. Well, I hope that if you are out there and read this and know that, yes, it’s true I’m here, and I’m just as strange as you.”
Frida Kahlo

The Two Fridas, by Frida Kahlo. Image captured at the Dallas Museum of Art, March 17, 2017.
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The Other “F” Word

I would prefer my “F” words include Fabulous, Fearless, and Fun.

I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure.  All of these have become the other “F” words  to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.

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What Is Fibromyalgia?

Fibromyalgia is a complex, chronic pain disorder that causes widespread pain and tenderness.

I often refer to the fact that I have fibromyalgia in my posts, but many of you might have found your way here through some of my other musings, so I thought I should introduce some of you to this condition.

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My Doctor Suggested CBD Oil for Pain

“The greatest evil is physical pain.”

If you know me or have read my posts, you know that I avoid drugs and prefer natural approaches and lifestyle choices to cope with my fibromyalgia and chronic back pain. That is not to say I don’t use any drugs, it’s just that I minimize what I take due to my heightened sensitivity to side effects.

There has been a lot written about CBD oil the past few years, especially as more states begin legalizing marijuana. It’s even made its way onto the pages of my beauty magazines. But since I am reluctant to use drugs (legal or otherwise), and I work for the government, I have never considered this as an option until recently.

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