“Never let the things you can’t do, stop you from doing what you can.”
Fibromyalgia Awareness Day was yesterday, but it’s also recognized for the entire month of May. Fibromyalgia Syndrome is marked by widespread musculoskeletal pain, fatigue, and sleeping problems. The result of this is often that those of us with it are a shell of our former selves, too fatigued or in pain to carry on the life we once led.
While running marathons may no longer be in our wheelhouse, let’s not forget there are still plenty of things we can do and enjoy in life. We may have to adapt or take things in moderation, but that doesn’t mean we have to live a life of loneliness and isolation.
“Never let the things you can’t do stop you from doing what you can.”
Just like Ferris Bueller says at the end of the movie, “Life moves pretty fast. If you don’t stop and look around once in awhile, you could miss it.” So my fellow fibrowarriors, my hope for you is that you find something you can do so you can enjoy the life you have.
May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.
While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.
One recent, restless night when I was experiencing a lot of pain and couldn’t sleep, so I jotted a few things down to describe Fibromyalgia. I couldn’t stand the sheets to touch me. My mind was racing. Sleep was evading me. I tried essential oils and pain relievers. After maybe 2 hours of sleep, I got up and went to work the next morning.
This is my life with fibromyalgia.
Never easy. Never predictable. Never fun.
F Fatigue, flare, forgetfulness
B Brain fog, brain won’t stop racing
R Restlessness, Radiating pains
O Overactive, firing nerves
M Myofascial pain, Morning stiffness
Y Yearning to be pain-free and be my old self
L Leg cramps, restlessness, and pain
G Gastro problems – IBS, nausea, diarrhea, constipation
A Aching everywhere – bones, joints, and muscles
They say you never really understand someone until you’ve walked a mile in their shoes. So if you encounter someone with Fibromyalgia and you think they don’t look sick… Think back to the last time you had the flu and your body ached all over, or the last time you couldn’t sleep but still had to go to work the next day, or perhaps even when you forgot where you left your keys. And then imagine what it would be like to experience that some days, most days, or even every day.
Now you’re starting to get a glimpse of Fibromyalgia.
P.S. I don’t often like to take pictures of myself. These days I am usually tired and don’t feel “picture ready.” But since it’s also Mother’s Day today, I wanted to share some pictures of me with my mom and my kids. This is the face of Fibromyalgia.
Spring is here, but there is still some winter in the air!
Technically it is spring, although with the cold front that arrived in Texas yesterday, it doesn’t feel like it. (We even had a fire last night.) But as it has been lately, I am a day late and a dollar short…. I just chalk it up to my crazy life these days.
In the months since posting my Fall Round-Up, a lot has changed for me. My mother had a stroke and my father entered hospice care, so there’s new stressors and changes going on with my family. I have been making monthly trips to Portland to help care for them. In between trips, I celebrated my 26th wedding anniversary by getting seven epidural steroid injections in my back for three bulging discs. (Ouch!) All the while dealing with family, fibromyalgia, a full-time job, and trying to keep up this blog. I do the best I can and I don’t beat myself up for what I can’t do.
Grace, not perfection. ~ Emily Ley
The holidays are long over and I am looking ahead to warmer days, spring flowers, and sunshine. But there is definitely still some winter in the air! In case you missed something, here is a round-up of my posts for the past few months – some on Fibromyalgia and others to inspire you to live your best life!
I would prefer my “F” words include Fabulous, Fearless, and Fun.
I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure. All of these have become the other “F” words to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.
February is traditionally the month we celebrate the heart, be it Valentines Day with candy hearts, Go Red for Women, or the American Heart Month. It also happens to be the month of my wedding anniversary, so hearts and celebrations abound for me!
My mother recently suffered a stroke, as a result of a poor-functioning heart. So in honor of mom, I wanted to do something different this month. Heart Disease is responsible for 1 in 4 deaths in the U. S., making it the number one cause. As February is the American Heart Association’s American Heart Month, I wanted to share 10 tips to inspire you to know the signs and to keep your heart healthy.