Just a quick one for a Monday morning. Anyone else feel like the weekends just aren’t long enough? 🙋🏻♀️ My to-do list is overflowing lately and there just isn’t enough time to get it all done AND relax a bit on the weekends. Sigh….
Perhaps it’s the exhaustion and pain (fibro flare) that I am still suffering. But this describes my Monday mood…. More coffee, please. Extra shot.
Nonetheless, I hope you all have a wonderful week! Do something wonderful for yourself!! Self-care is selfless, not selfish. (More on that later.) I am taking Friday off to knock off some things from that list. 😉 But first, coffee.
May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.
While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.
One recent, restless night when I was experiencing a lot of pain and couldn’t sleep, so I jotted a few things down to describe Fibromyalgia. I couldn’t stand the sheets to touch me. My mind was racing. Sleep was evading me. I tried essential oils and pain relievers. After maybe 2 hours of sleep, I got up and went to work the next morning.
This is my life with fibromyalgia.
Never easy. Never predictable. Never fun.
F Fatigue, flare, forgetfulness
B Brain fog, brain won’t stop racing
R Restlessness, Radiating pains
O Overactive, firing nerves
M Myofascial pain, Morning stiffness
Y Yearning to be pain-free and be my old self
L Leg cramps, restlessness, and pain
G Gastro problems – IBS, nausea, diarrhea, constipation
A Aching everywhere – bones, joints, and muscles
They say you never really understand someone until you’ve walked a mile in their shoes. So if you encounter someone with Fibromyalgia and you think they don’t look sick… Think back to the last time you had the flu and your body ached all over, or the last time you couldn’t sleep but still had to go to work the next day, or perhaps even when you forgot where you left your keys. And then imagine what it would be like to experience that some days, most days, or even every day.
Now you’re starting to get a glimpse of Fibromyalgia.
P.S. I don’t often like to take pictures of myself. These days I am usually tired and don’t feel “picture ready.” But since it’s also Mother’s Day today, I wanted to share some pictures of me with my mom and my kids. This is the face of Fibromyalgia.
I would prefer my “F” words include Fabulous, Fearless, and Fun.
I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure. All of these have become the other “F” words to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.
Fibromyalgia is a complex, chronic pain disorder that causes widespread pain and tenderness.
I often refer to the fact that I have fibromyalgia in my posts, but many of you might have found your way here through some of my other musings, so I thought I should introduce some of you to this condition.
Setbacks aren’t failures. They are opportunities to overcome.
Life with chronic pain or a chronic condition is never predictable. You never know if you’ll wake up feeling good or bad. This has been my life for the last 20 years. I count myself lucky that I have been able to cope as well as I have, still work full-time, and find some time for activities I enjoy. So when you suffer a setback like two-weeks and counting of a lower back/disc pain, you just have to prioritize what gets done and what doesn’t. Setbacks aren’t failures. They are opportunities to overcome.
“The beautiful thing about setbacks is, they introduce us to our strengths.”
Letting go of things that no longer bring you joy or satisfaction can in itself be joyful and satisfying!
It’s a new year full of new hope and new promise. Many of us start the new year with resolutions or diets or workout regimens, hoping to shed some holiday weight or gain some new perspective or success. This year I didn’t make any bold resolutions or promises, but I did choose a word for the year. Simplify.
Last year was all about being deliberate about my choices and what I did. I found this gave me increased success with my blog. I wrote more posts, I gained more followers, I engaged more, and I even got nominated for an award. So what is it that I want to simplify this year?
“The ability to simplify means to eliminate the unnecessary so that the necessary may speak.” ~ Hans Hofmann
“Doctors don’t know what causes fibromyalgia, but it most likely involves a variety of factors working together.”
Here are some ugly truths: Women and men experience pain differently. Doctors are less likely to treat women’s pain. Health issues that disproportionately affect women are not studied as much as those affecting men. It can take women multiple visits and sometimes years to diagnose their medical issues and chronic illnesses. And when painful conditions like Endometriosis and Fibromyalgia don’t have a simple test for diagnosing, those visits and months and years can prove both emotionally and physically draining when you’re already in pain and still having to fight for a diagnosis.