Tips for Living with Fibromyalgia

Top tips and realistic recommendations from bloggers who live with Fibromyalgia

May 12th every year is Fibromyalgia Awareness Day, to help raise awareness of this often invisible condition. It is characterized by widespread pain and fatigue, with no known cause, a variety of different symptoms, and no one-size-fits-all treatment.

This year, several Fibro Bloggers from FibroBloggerDirectory.com have joined together to share their top recommendations for living with fibromyalgia throughout the month of May. I am proud to join in with this group. Please visit all of these other wonderful bloggers’ links to find more fibromyalgia resources.

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Spring Fibro Update

And how I cope with fibromyalgia flares

I just left my doctor’s office for my annual physical and was given a clean bill of health. Well except for my fibromyalgia, that is. That ugly beast is still with me. My doctor rewarded me with not having to do blood work this time. No needless poking! I also received my last Prolia injection! In six months I will switch to a different medication for two years, and then should be done with medication for osteoporosis.

It’s a nice feeling to think you are doing something right with your health.

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Fibro Fatigue: 5 Coping Tips

Fatigue is a debilitating, all encompassing feeling of exhaustion.

This guest post has been written by Ann-Marie D’Arcy-Sharpe, a Pain Educator and Blogger at Pathways Health Ltd. She and I both live with Fibromyalgia; she also lives with Arthritis and Bipolar disorder. Her article is so timely for me, as I have been suffering from the daily fatigue that comes with living with our condition. Please enjoy reading her tips!

One of the primary symptoms of fibromyalgia, along with widespread pain, is fatigue. Fatigue is a debilitating, all encompassing feeling of exhaustion. Personally I find fatigue one of the most difficult symptoms of fibromyalgia to live with and to push through. It can feel as though your entire body is being weighed down. Every action feels like an extreme effort. It can even make you feel as though you’re thinking through a fog. 

We’re all individuals so we will each experience our symptoms, including fatigue, in different ways and to different degrees. My fatigue is a symptom I experience daily, even when my pain levels and other symptoms are well managed. Over time I’ve had to learn how to cope with fatigue so that I can function in the best way I can in spite of it. I wanted to share five coping tips I hope could be useful for other fibromyalgia warriors.

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A Holistic Approach to Fibromyalgia

Holistic health focuses on the whole person rather than individual illness or specific body parts.

As fibromyalgia is a complex and poorly understood syndrome, with no defined cause, I have found that doctors are more inclined to just treat symptoms. Years ago I became disillusioned and weary of the medical approach of prescribing medication for symptoms, rather than trying to get to the root cause of various health problems, so I started taking more control of my own health journey (read more: Becoming Your Own Health Advocate). I want to share how I approach my health and fibromyalgia holistically.

Don’t get me wrong, I’m not saying my approach will work for anyone else, let alone everyone else. We are all individuals with different ailments, pain levels and thresholds, environments, and situations. I am just sharing my approach to managing my fibromyalgia to minimize flares and the disruption to daily life. And first, you have to understand what I mean by “holistic.”

“Holistic health is actually an approach to life. Rather than focusing on illness or specific body parts…[it] considers the whole person.”

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