Letter Board No. 36

Life with fibromyalgia can be tough.

Life with fibromyalgia can be tough. It can be downright debilitating at times. On day 13 of a very wicked fibro flare I finally started feeling human again. Not quite 100% mind you, but it appears I am finally on the downside of this one.

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Ask Me What Doesn’t Hurt

Fibromyalgia is characterized by widespread pain, fatigue, and sleep issues.

When I was first diagnosed with Fibromyalgia almost 20 years ago, it wasn’t a well known or understood condition. Twenty years later and it’s still not well understood by the medical community, but I would say it is more well known these days thanks to high profile people with fibromyalgia, like Lady Gaga, Morgan Freeman, and Lena Dunham, among others.

Fibromyalgia is characterized by widespread pain, fatigue, and sleep issues. I typically wake up with morning stiffness that can be felt the second my feet hit the floor. And some days I often think the list of what doesn’t hurt is shorter than the list that does.

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Letter Board No. 28

“Even when it’s dark, the stars come out.”

It’s the last day of Pain Awareness Month and I wanted to share a quote to remind everyone not to lose hope. Chronic and acute pain can often lead to exhaustion, depression, or despair. Maintaining a positive outlook that better days are ahead can help overcome some of that. Hope for less pain, better treatments, or maybe even a cure.

“Don’t lose hope. Even when it’s dark, the stars come out.”

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Letter Board No. 17

“Never let the things you can’t do, stop you from doing what you can.”

Fibromyalgia Awareness Day was yesterday, but it’s also recognized for the entire month of May. Fibromyalgia Syndrome is marked by widespread musculoskeletal pain, fatigue, and sleeping problems. The result of this is often that those of us with it are a shell of our former selves, too fatigued or in pain to carry on the life we once led.

While running marathons may no longer be in our wheelhouse, let’s not forget there are still plenty of things we can do and enjoy in life. We may have to adapt or take things in moderation, but that doesn’t mean we have to live a life of loneliness and isolation.

“Never let the things you can’t do stop you from doing what you can.”

Ronald Reagan

Just like Ferris Bueller says at the end of the movie, “Life moves pretty fast. If you don’t stop and look around once in awhile, you could miss it.” So my fellow fibrowarriors, my hope for you is that you find something you can do so you can enjoy the life you have.

Cheers!

Cynthia