Just a quick one for a Monday morning. Anyone else feel like the weekends just aren’t long enough? 🙋🏻♀️ My to-do list is overflowing lately and there just isn’t enough time to get it all done AND relax a bit on the weekends. Sigh….
Perhaps it’s the exhaustion and pain (fibro flare) that I am still suffering. But this describes my Monday mood…. More coffee, please. Extra shot.
Nonetheless, I hope you all have a wonderful week! Do something wonderful for yourself!! Self-care is selfless, not selfish. (More on that later.) I am taking Friday off to knock off some things from that list. 😉 But first, coffee.
May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.
While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.
One recent, restless night when I was experiencing a lot of pain and couldn’t sleep, so I jotted a few things down to describe Fibromyalgia. I couldn’t stand the sheets to touch me. My mind was racing. Sleep was evading me. I tried essential oils and pain relievers. After maybe 2 hours of sleep, I got up and went to work the next morning.
This is my life with fibromyalgia.
Never easy. Never predictable. Never fun.
F Fatigue, flare, forgetfulness
B Brain fog, brain won’t stop racing
R Restlessness, Radiating pains
O Overactive, firing nerves
M Myofascial pain, Morning stiffness
Y Yearning to be pain-free and be my old self
L Leg cramps, restlessness, and pain
G Gastro problems – IBS, nausea, diarrhea, constipation
A Aching everywhere – bones, joints, and muscles
They say you never really understand someone until you’ve walked a mile in their shoes. So if you encounter someone with Fibromyalgia and you think they don’t look sick… Think back to the last time you had the flu and your body ached all over, or the last time you couldn’t sleep but still had to go to work the next day, or perhaps even when you forgot where you left your keys. And then imagine what it would be like to experience that some days, most days, or even every day.
Now you’re starting to get a glimpse of Fibromyalgia.
P.S. I don’t often like to take pictures of myself. These days I am usually tired and don’t feel “picture ready.” But since it’s also Mother’s Day today, I wanted to share some pictures of me with my mom and my kids. This is the face of Fibromyalgia.
Living with chronic condition like Fibromyalgia can be anything but joyful most days of the week. You are in pain, tired, and can be experiencing a myriad of other symptoms at any one time. And you often feel alone.
Then there’s the fact that you usually have to explain to people just what the heck Fibromyalgia Syndrome is and the fact that there is no good understanding of what causes it, thus there’s no cure as of yet. This alone can spin you into a life of social separation and loneliness.
It is widely believed that artist Frida Kahlo also would have been diagnosed with Fibromyalgia, if there had been that diagnosis during her time. Her art depicts chronic pain and her diaries reflect a life filled with physical and emotional pain. Yet, she continued to do what she loved, which was to paint, and toward the end of her life she turned her attention to capturing everyday existence.
“I used to think I was the strangest person in the world but then I thought there are so many people in the world, there must be someone just like me who feels bizarre and flawed in the same ways I do. I would imagine her, and imagine that she must be out there thinking of me, too. Well, I hope that if you are out there and read this and know that, yes, it’s true I’m here, and I’m just as strange as you.” Frida Kahlo
Lately I have had a difficult time writing new blog posts. I am feeling overwhelmed, exhausted, had a flare-up of my fibromyalgia, and am just lacking the creative inspiration and desire to research and write a post. And that’s OK by me.
We all face times of uncertainty in our lives. We all need to take a step back at times and do less. For this month, I am giving you 10 ways to unplug and recharge. And the great thing is this list applies to those with or without a chronic illness, so I hope this gives you some ideas to find time for YOU.
I would prefer my “F” words include Fabulous, Fearless, and Fun.
I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure. All of these have become the other “F” words to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.
If you know me or have read my posts, you know that I avoid drugs and prefer natural approaches and lifestyle choices to cope with my fibromyalgia and chronic back pain. That is not to say I don’t use any drugs, it’s just that I minimize what I take due to my heightened sensitivity to side effects.
There has been a lot written about CBD oil the past few years, especially as more states begin legalizing marijuana. It’s even made its way onto the pages of my beauty magazines. But since I am reluctant to use drugs (legal or otherwise), and I work for the government, I have never considered this as an option until recently.
This past week has seen some weather extremes across the country. Despite the Polar vortex that gripped parts of the country, Punxsutawney Phil came out of his hole, did not see his shadow, thereby predicting an early spring. I don’t know about you, but I don’t usually believe the Groundhog Day tradition for my weather reports. (And Phil IS usually wrong!)