Grief can be so overwhelming that the hardest thing to muster is hope and strength.
I have been trying to write this post for many months now, but have been consumed by grief, a lack of creativity, and no desire to write.
Grief takes on many forms when you have chronic pain or a chronic illness, like fibromyalgia. You might be grieving the person you used to be, the life you used to have, or all of the things you used to be able to do.
Any loss can be profound and all-consuming. Even life-changing.
Just a quick one for a Monday morning. Anyone else feel like the weekends just aren’t long enough? 🙋🏻♀️ My to-do list is overflowing lately and there just isn’t enough time to get it all done AND relax a bit on the weekends. Sigh….
Perhaps it’s the exhaustion and pain (fibro flare) that I am still suffering. But this describes my Monday mood…. More coffee, please. Extra shot.
Nonetheless, I hope you all have a wonderful week! Do something wonderful for yourself!! Self-care is selfless, not selfish. (More on that later.) I am taking Friday off to knock off some things from that list. 😉 But first, coffee.
May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.
While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.
Living with chronic condition like Fibromyalgia can be anything but joyful most days of the week. You are in pain, tired, and can be experiencing a myriad of other symptoms at any one time. And you often feel alone.
Then there’s the fact that you usually have to explain to people just what the heck Fibromyalgia Syndrome is and the fact that there is no good understanding of what causes it, thus there’s no cure as of yet. This alone can spin you into a life of social separation and loneliness.
It is widely believed that artist Frida Kahlo also would have been diagnosed with Fibromyalgia, if there had been that diagnosis during her time. Her art depicts chronic pain and her diaries reflect a life filled with physical and emotional pain. Yet, she continued to do what she loved, which was to paint, and toward the end of her life she turned her attention to capturing everyday existence.
“I used to think I was the strangest person in the world but then I thought there are so many people in the world, there must be someone just like me who feels bizarre and flawed in the same ways I do. I would imagine her, and imagine that she must be out there thinking of me, too. Well, I hope that if you are out there and read this and know that, yes, it’s true I’m here, and I’m just as strange as you.” Frida Kahlo
Lately I have had a difficult time writing new blog posts. I am feeling overwhelmed, exhausted, had a flare-up of my fibromyalgia, and am just lacking the creative inspiration and desire to research and write a post. And that’s OK by me.
We all face times of uncertainty in our lives. We all need to take a step back at times and do less. For this month, I am giving you 10 ways to unplug and recharge. And the great thing is this list applies to those with or without a chronic illness, so I hope this gives you some ideas to find time for YOU.
I would prefer my “F” words include Fabulous, Fearless, and Fun.
I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure. All of these have become the other “F” words to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.
If you know me or have read my posts, you know that I avoid drugs and prefer natural approaches and lifestyle choices to cope with my fibromyalgia and chronic back pain. That is not to say I don’t use any drugs, it’s just that I minimize what I take due to my heightened sensitivity to side effects.
There has been a lot written about CBD oil the past few years, especially as more states begin legalizing marijuana. It’s even made its way onto the pages of my beauty magazines. But since I am reluctant to use drugs (legal or otherwise), and I work for the government, I have never considered this as an option until recently.