In addition to nutrition and medicine, you need other strategies for coping with the daily pain and major flares that occur.
You have probably experienced something like this before: You go to bed feeling fine….maybe just OK….no worse than usual… And when you wake up in the morning you have some new pain. You roll out of bed. You’re stiff and moving slow. Every step hurts. You think you are never going to straighten up again. And then it hits you that there is some new ache that wasn’t there when you went to bed last night. For some of us, that may just be the aging process. For others, welcome to life with fibromyalgia.
“To hurt is as human as to breathe.” ~ J. K. Rowling
Chronic physical pain often also creates emotional suffering. Seven steps to deal with the loneliness and isolation of chronic pain.
You know the drill. You are in pain and suffering, often silently. Because of your condition you are in pain quite often and talking about it can be construed as “complaining,” and after a while can fall on deaf ears. You might be in deep despair because the pain is too much. Your life as you knew it has come to a halt. Exhaustion, stress, lack of sleep, and pain. That is the life you know now.
Sure, your friends and family know there’s something wrong with you. But do they really know what you’re going through? And even so, do they really want to hear about it? Again. And after you’ve declined a few invitations because you weren’t quite feeling up to going out and being social, the invitations just stop coming. Continue reading “Combating the Loneliness of Chronic Pain”
I truly believe in using food, exercise, and things from nature to heal the body.
Finally, I have had some pain relief! If you have been following my story the last several months, you know I have been suffering with some acute pain. I am happy to report that I have not had numbness or pain in my arm now for three whole weeks!! Zip. Zilch. Nada. That’s not to say all is well or I have any answers. Really, more questions. But for now I am enjoying the long-overdue break from my neck/shoulder/arm pain. 🙂
“Relief is a wonderful emotion, highly underrated. In fact I prefer it to elation or joy. Relief lets the air out of the Tire of Pain.” ~ Adriana Trigiani
If you have read my last few posts, you know I have spent the last 5 months in and out of doctors spending tons of money on tests to diagnose some chronic and acute pain I thought was associated with a past neck surgery. The tests find little to nothing, so now I am wondering if this is just new manifestations of my fibromyalgia. The last few days I had decided it is time to regroup and try a more holistic approach. Reading this blog post from Back Pain Blog UK and the linked article this morning just confirms that for me. Check her blog and all the other great bloggers on FibroBloggerDirectory.com.
The Secret Life of Pain is an article in New York Times which a friend sent me to read, and I just felt I had to share with my pain pals.
The article starts off by telling you about the double life that David Roberts, a former academic physicist and diplomat who lives and works in New York City.
He goes on to explain how he hid is chronic pain in many ways, one being that he had an orthotic cushion inside his briefcase and would make a joke out of sitting on the briefcase. He also wore a corset and heat wrap which he disguised under his tailored suit. He had become adept at hiding his back pain from everyone except his family.
He would even sneak upstairs when working at conferences to get some pain relief from his wife who would work on his back. Eventually he had…
I saw this graphic on twitter from Dr. Margare Aranda and thought this pretty much sums up my #currentsituation so I wanted share. Sometimes you really have to fight for your diagnosis.
I wrote about trying to get a diagnosis for this chronic pain I have had off and on for a few years now in my last very lengthy blog post. Tests, procedures, scans, second opinions, third opinions. I have one more appointment tomorrow morning. My binder is ready with all of my recent exams. My fingers are crossed. And I have hope.
“At the end of the day all you need is hope and strength. Hope that it will get better, and strength to hold on until it does.” ~ Jazmin Whitmore
I think for many people suffering in pain, just knowing they aren’t crazy and that there is some logical, medical explanation for what they are experiencing gives a profound sense of relief and peace of mind. Getting to the correct diagnosis should get you on the proper road to recovery. As Gandhi said, it’s 3/4 of the remedy!
Have you had challenges getting a chronic condition diagnosed? Do you have any lessons learned that you can share?
“Sometimes the curiosity can kill the soul but leave the pain.” ~Alice
Perhaps that title should read “Lessons Learned from Attempting to Diagnose Chronic Pain” since I still don’t have answers… I haven’t written much lately due to some chronic neck pain/shoulder/arm that has been plaguing me for months. I come home from work exhausted and drained, and spending more time in front of a computer is the last thing I want to do.
Down the Rabbit Hole
Do you ever feel like the hassle and expense of getting to the root of a medical problem might outweigh the benefits of finding out what the problem is? For the last several months, I feel like I have gone down the proverbial rabbit hole in “Alice in Wonderland”, where everything is not as it seems!
Living a normal life with Multiple Sclerosis is something I have learned to accommodate within my life over the years. My goal is to be able to help others to get through the difficult obstacle that comes along with being diagnosed with a chronic illness. I hope that my blog will reassure others that they are not alone with these battles and that we all do have that inner strength to get through anything.