For Dad

My father was many things to many people, but to me he was just daddy. And he was my hero.

This Father’s Day is quite poignant for me, as I lost my father two weeks ago now. The last words he said to me just a few days before that were, “Happy Birthday,” and then he drifted off to sleep for a few days. While his passing was expected given the 7 months he spent in hospice care, the loss did not hurt any less. So today, Father’s Day, I will spend quietly mourning the loss of my dad, remembering all the great times we had, and celebrating my husband for the father he is to our two kids.

Dad didn’t want a funeral or a fuss. We had a small memorial to honor him, and so the family could come together and share stories. My oldest brother gave the service and led us in songs. My older brother put together a slide show of a lifetime of memories. And I gave the eulogy. Afterwards we had a wonderful meal and there I was, taking dad’s place, and giving a toast.

Dad’s eulogy was the hardest thing I have ever sat down to write. It was even harder to give. But today, I want to share it.

Continue reading “For Dad”

Letter Board No. 17

“Never let the things you can’t do, stop you from doing what you can.”

Fibromyalgia Awareness Day was yesterday, but it’s also recognized for the entire month of May. Fibromyalgia Syndrome is marked by widespread musculoskeletal pain, fatigue, and sleeping problems. The result of this is often that those of us with it are a shell of our former selves, too fatigued or in pain to carry on the life we once led.

While running marathons may no longer be in our wheelhouse, let’s not forget there are still plenty of things we can do and enjoy in life. We may have to adapt or take things in moderation, but that doesn’t mean we have to live a life of loneliness and isolation.

“Never let the things you can’t do stop you from doing what you can.”

Ronald Reagan

Just like Ferris Bueller says at the end of the movie, “Life moves pretty fast. If you don’t stop and look around once in awhile, you could miss it.” So my fellow fibrowarriors, my hope for you is that you find something you can do so you can enjoy the life you have.

Cheers!

Cynthia

Fibromyalgia Awareness Day: Life with Fibromyalgia

May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.

While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.


One recent, restless night when I was experiencing a lot of pain and couldn’t sleep, so I jotted a few things down to describe Fibromyalgia. I couldn’t stand the sheets to touch me. My mind was racing. Sleep was evading me. I tried essential oils and pain relievers. After maybe 2 hours of sleep, I got up and went to work the next morning.

This is my life with fibromyalgia.

Never easy. Never predictable. Never fun.



F Fatigue, flare, forgetfulness

I Insomnia

B Brain fog, brain won’t stop racing

R Restlessness, Radiating pains

O Overactive, firing nerves

M Myofascial pain, Morning stiffness

Y Yearning to be pain-free and be my old self

A Anxiety

L Leg cramps, restlessness, and pain

G Gastro problems – IBS, nausea, diarrhea, constipation

I Itching

A Aching everywhere – bones, joints, and muscles


They say you never really understand someone until you’ve walked a mile in their shoes. So if you encounter someone with Fibromyalgia and you think they don’t look sick… Think back to the last time you had the flu and your body ached all over, or the last time you couldn’t sleep but still had to go to work the next day, or perhaps even when you forgot where you left your keys. And then imagine what it would be like to experience that some days, most days, or even every day.

Now you’re starting to get a glimpse of Fibromyalgia.

P.S. I don’t often like to take pictures of myself. These days I am usually tired and don’t feel “picture ready.” But since it’s also Mother’s Day today, I wanted to share some pictures of me with my mom and my kids. This is the face of Fibromyalgia.

Finding Joy with Fibromyalgia

Four simple steps to finding joy

Living with chronic condition like Fibromyalgia can be anything but joyful most days of the week. You are in pain, tired, and can be experiencing a myriad of other symptoms at any one time. And you often feel alone.

Then there’s the fact that you usually have to explain to people just what the heck Fibromyalgia Syndrome is and the fact that there is no good understanding of what causes it, thus there’s no cure as of yet. This alone can spin you into a life of social separation and loneliness.


It is widely believed that artist Frida Kahlo also would have been diagnosed with Fibromyalgia, if there had been that diagnosis during her time. Her art depicts chronic pain and her diaries reflect a life filled with physical and emotional pain. Yet, she continued to do what she loved, which was to paint, and toward the end of her life she turned her attention to capturing everyday existence.

“I used to think I was the strangest person in the world but then I thought there are so many people in the world, there must be someone just like me who feels bizarre and flawed in the same ways I do. I would imagine her, and imagine that she must be out there thinking of me, too. Well, I hope that if you are out there and read this and know that, yes, it’s true I’m here, and I’m just as strange as you.”
Frida Kahlo

The Two Fridas, by Frida Kahlo. Image captured at the Dallas Museum of Art, March 17, 2017.
Continue reading “Finding Joy with Fibromyalgia”

10 Things to Help You Combat Stress

April is Stress Awareness Month

April is Stress Awareness Month. Is it a coincidence that it coincides with one of the major stressors in American’s lives? (Tax Day) We all face every day stressors such as our commute, our jobs, paying bills, raising kids. But then there are those other things that compound and have longer lasting effects on you. Perhaps you have finals coming up or a work deadline or family troubles or maybe you’re battling a chronic condition or illness. Or perhaps you have a combination of many stressors in your life.

Stress can be positive – it’s what activates your fight or flight mechanism, or helps you to meet a deadline – or negative. It’s the negative stress that has a detrimental impact on your health and can show up in many ways – over/under eating, not sleeping, acne, physical ailments like stomach or heart issues, and flares of chronic conditions like fibromyalgia. Learning to cope with these burdens so that they don’t build up can make a huge difference in your health.

Photo by energepic.com on Pexels.com

It has been linked to a wide range of health issues, including mood, sleep, and appetite problems — and yes, even heart disease.

Wellness Magazine
Continue reading “10 Things to Help You Combat Stress”

Winter Round-Up

Spring is here, but there is still some winter in the air!

Technically it is spring, although with the cold front that arrived in Texas yesterday, it doesn’t feel like it. (We even had a fire last night.) But as it has been lately, I am a day late and a dollar short…. I just chalk it up to my crazy life these days.

In the months since posting my Fall Round-Up, a lot has changed for me. My mother had a stroke and my father entered hospice care, so there’s new stressors and changes going on with my family. I have been making monthly trips to Portland to help care for them. In between trips, I celebrated my 26th wedding anniversary by getting seven epidural steroid injections in my back for three bulging discs. (Ouch!) All the while dealing with family, fibromyalgia, a full-time job, and trying to keep up this blog. I do the best I can and I don’t beat myself up for what I can’t do.

Grace, not perfection. ~ Emily Ley

The holidays are long over and I am looking ahead to warmer days, spring flowers, and sunshine. But there is definitely still some winter in the air! In case you missed something, here is a round-up of my posts for the past few months – some on Fibromyalgia and others to inspire you to live your best life!

Continue reading “Winter Round-Up”

10 Things to Inspire You This Month

10 ways to unplug and recharge

Lately I have had a difficult time writing new blog posts. I am feeling overwhelmed, exhausted, had a flare-up of my fibromyalgia, and am just lacking the creative inspiration and desire to research and write a post. And that’s OK by me.

We all face times of uncertainty in our lives. We all need to take a step back at times and do less. For this month, I am giving you 10 ways to unplug and recharge. And the great thing is this list applies to those with or without a chronic illness, so I hope this gives you some ideas to find time for YOU.

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