Every day is Awareness Day for those who suffer from fibromyalgia.
Every year May 12th has been designated as “Fibromyalgia Awareness Day” to shine a light on this invisible illness. Most of us who suffer from this chronic condition feel that every day is our awareness day, as we often have to explain what it is to people. Trust me when I say it is more than what you see in the pharmaceutical commercials on TV.
“Self-care is not about self-indulgence, it’s about self-preservation.”
Back in January I wrote about the importance of self-care and some things I vowed to work on myself. As May is Fibromyalgia Awareness month, I decided it was time to check in and see just how good or bad I am doing on my own self-care. Practice what you preach, and all. I have found more success following strategies for healthy living, than I ever did taking a pill that the doctors prescribed. So taking care of myself has to be my number one priority, in order to minimize my fibro-flares. You cannot, after all, drink from an empty cup, and having a flare can often feel like you are running on empty.
Having Fibromyalgia, I find I quite often don’t sleep well. I can’t fall asleep. Or I can’t stay asleep. Or when I do sleep a few hours, it’s not restful. And I certainly don’t remember my dreams very well. All common issues for those who suffer this condition.
Some nights, despite how tired I may be and how many good habits I use to prepare for bed (hot tea, warm bath, lavender spray…), it seems like I am wide awake once my head hits the pillow and I turn out the lights. My mind will be racing and I just can’t seem to be able to turn it off.
Those are the nights I pull out a little journal from my night stand, and I write down the random thoughts that pop into my head. I just write for as long I can, whatever gibberish I want. And somehow, the process of getting those thoughts out of my head and onto paper helps. I am able to quiet my mind, lie back down, and somehow sleep…per chance to dream.
P. S. Fibromyalgia and sleep troubles are, to me, very much like the chicken and the egg. Which came first? Does lack of sleep and increased fatigue lead to FMS? Or does FMS create the sleep disturbances which then leads to the increased fatigue? Some studies indicate FMS is a by-product of sleep disorders. Seeking out the help of a sleep specialist might then be the cure for a good night’s sleep.
It’s like a turtle trying to run in peanut butter.
Fibro Fog. Brain Fog. Senior Moments.
People who live with Fibromyalgia (FMS) refer to their Brain Fog moments as “Fibro Fog.” This common symptom is characterized by short-term memory loss, cognitive issues, difficulties concentrating or retaining information, transposing letters/numbers, just to name a few.
I find my symptoms growing worse as I get older. I am transposing numbers all of the time. It takes me longer to do simple tasks sometimes as a result. And it is definitely harder for me to remember something someone told me a few minutes ago. Just ask my family. (That’s why at work I take notes in a searchable online notebook (OneNote) if I will have to remember something later.) Continue reading “Fibro Fog Defined”