Fibro Fatigue: 5 Coping Tips

Fatigue is a debilitating, all encompassing feeling of exhaustion.

This guest post has been written by Ann-Marie D’Arcy-Sharpe, a Pain Educator and Blogger at Pathways Health Ltd. She and I both live with Fibromyalgia; she also lives with Arthritis and Bipolar disorder. Her article is so timely for me, as I have been suffering from the daily fatigue that comes with living with our condition. Please enjoy reading her tips!

One of the primary symptoms of fibromyalgia, along with widespread pain, is fatigue. Fatigue is a debilitating, all encompassing feeling of exhaustion. Personally I find fatigue one of the most difficult symptoms of fibromyalgia to live with and to push through. It can feel as though your entire body is being weighed down. Every action feels like an extreme effort. It can even make you feel as though you’re thinking through a fog. 

We’re all individuals so we will each experience our symptoms, including fatigue, in different ways and to different degrees. My fatigue is a symptom I experience daily, even when my pain levels and other symptoms are well managed. Over time I’ve had to learn how to cope with fatigue so that I can function in the best way I can in spite of it. I wanted to share five coping tips I hope could be useful for other fibromyalgia warriors.

Continue reading “Fibro Fatigue: 5 Coping Tips”

The Other “F” Word

I would prefer my “F” words include Fabulous, Fearless, and Fun.

I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure.  All of these have become the other “F” words  to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.

Continue reading “The Other “F” Word”

Fibromyalgia Symptom Round-up

With over 200 symptoms or co-morbidities, fibromyalgia symptoms can vary from person to person.

With 18 trigger points across the body, one of the most defining symptoms of Fibromyalgia Syndrome is widespread pain. It is also characterized by extreme fatigue, sleeping issues, headaches, and a myriad of other symptoms. It can be difficult at times to ascertain whether you have yet another weird symptom of fibromyalgia, or you truly have something else wrong. And the symptoms vary from one person to the next.

Research suggests that “the brain of a fibromyalgia patient amplifies pain signals” and  that it “is a complex condition whose definition and measurement extend far beyond charting patient-reported pain levels on a numeric scale.” It’s no wonder there are over 200 symptoms and/or co-morbidities that have been attributed to this syndrome. Continue reading “Fibromyalgia Symptom Round-up”

Taking Time to Recharge

This past week, Thanksgiving week, I took time off from the office. Several days I was home by myself all day. The peace and quiet was quite enjoyable. I made lists and crossed things off. I read. I did yoga and walked the dogs. I took time away from social media and did very little work during the week. I felt mentally recharged… And then I returned to work yesterday and came home exhausted!

relaxation

Vitamin R
So how do we combat that feeling at the end of the work day? Sleep is not the only way to recharge yourself, although it is a big one. In addition to rest, there is relaxation and recreation. These are what Dr. Carri refers to as “Vitamin R” (reference: JJ Virgin podcast), and I was in need of some last week to combat my mental and physical fatigue. I was feeling a little bit of work-related burn-out. Too many projects, too little time!

Sometimes I have to give myself permission to take some “me” time. As someone who suffers from fibromyalgia and is one to always make sure her family is cared for first, fatigue is a way of life for me. “I’m exhausted” is a pretty common answer from me to the pleasantry “How are you?”  Sometimes I wear the fibrowarrior term like a badge of courage and don’t practice self-care. So having a few days where I was only having to care for me, myself, and I…utter bliss, I say.

Time-outs Aren’t Just for Kids
Dr. John Izzo talks about the need for adults to take some self-imposed time-outs for ourselves to rest, recharge, and have fun. A little R&R. See, that “Vitamin R” term is starting to make sense! We know that stepping away from a problem we are having difficulty solving can help us gain a new perspective and innovate. So in the same vein, stepping away from our daily grind of work, emails, interruptions can help to energize us. Giving ourselves permission to take a time-out of a day or a week away from the office may not always be possible, but allowing yourself some unscheduled time during the day can do wonders for your mental energy.

“Great is the human who has not lost his inner childlike heart.” ~ John Reed

Avoiding Burnout
The book You Don’t Have to Go Home From Work Exhausted: A Program to Bring Joy, Energy, and Balance to Your Life talks about learning to refuel your tank to avoid that burnout we can all be subject to. Here are the 12 key lifestyle factors their research found to be factors in affecting energy levels:

  • Sleep
  • Proper diet for energy and high performance
  • Exercise
  • Have alone time
  • Take time to read and learn
  • Fill your spiritual growth
  • Experience love
  • Have fun, joy, and play!
  • Spend quality time with family and friends
  • Find new interests or renew interest in an old hobby
  • Take vacations
  • Have a sense of purpose

“The way I see it, if you want the rainbow, you gotta put up with the rain.” ~ Dolly Parton

We all could use a little more Joy and Energy in our lives! Think about how much time you take for each of those 12 things. Is it enough? Take some time for yourself this week to get away from whatever situation at home or work is troubling you or sapping you of your precious energy, and enjoy a few minutes outside or reading a book or calling your mom. We owe it to ourselves to find those things that bring us energy and joy.

What are you going to do this week to create a little Rest, Relaxation, or Recreation in your life?

Cheers!

Cynthia

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