Reblog: Fibro Friday #128

Loved this quote that was shared on the Fibro Blogger Directory‘s weekly link-up, so I thought I would share it. Sharing is caring, after all. I often link up my relevant blog posts here (although there haven’t been many lately!). You will find many great bloggers who write about fibromyalgia, chronic pain, chronic fatigue, Lyme disease, et al. I hope you will check them out!

“Everybody needs beauty as well as bread,
places to play in and pray in,
where nature may heal and give strength
to body and soul.”
~ John Muir

via Fibro Friday week 128 — Fibro Blogger Directory

Cheers!

Cynthia

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Self-Care Self-Check

“Self-care is not about self-indulgence, it’s about self-preservation.”

Back in January I wrote about the importance of self-care and some things I vowed to work on myself. As May is Fibromyalgia Awareness month, I decided it was time to check in and see just how good or bad I am doing on my own self-care. Practice what you preach, and all. I have found more success following strategies for healthy living, than I ever did taking a pill that the doctors prescribed. So taking care of myself has to be my number one priority, in order to minimize my fibro-flares. You cannot, after all, drink from an empty cup, and having a flare can often feel like you are running on empty.Cannotdrink

Here’s what I wanted to improve on: Continue reading “Self-Care Self-Check”

Fibromyalgia, Courage, and Strength

This quote popped up on my weekly planner page for today, but it is one I have read before.

life-quote-strength-courage

This embodies what it’s like to have fibromyalgia for me. Having the courage to push through the pain on a daily basis, even when you feel like you have no strength left to do so. In the 16+ years since my diagnosis, I have had plenty of days where getting out of bed and walking across the floor were a challenge. When every step you take radiates pain through your body, and you wonder: Why am I doing this? Why don’t I just crawl back in bed? It would be so much easily to just curl up under the blankets with a heating pad than to try to work out, shower, and get ready to go to work. Continue reading “Fibromyalgia, Courage, and Strength”

Fibro Fog Defined

It’s like a turtle trying to run in peanut butter.

Fibro Fog. Brain Fog. Senior Moments.

People who live with Fibromyalgia (FMS) refer to their Brain Fog moments as “Fibro Fog.” This common symptom is characterized by short-term memory loss, cognitive issues, difficulties concentrating or retaining information, transposing letters/numbers, just to name a few.

I find my symptoms growing worse as I get older. I am transposing numbers all of the time. It takes me longer to do simple tasks sometimes as a result. And it is definitely harder for me to remember something someone told me a few minutes ago. Just ask my family. (That’s why at work I take notes in a searchable online notebook (OneNote) if I will have to remember something later.) Continue reading “Fibro Fog Defined”

Curse the Pigeon Pose

This post is brought to you by the today’s Daily Post prompt. Transmogrify means “to change in appearance or form, especially strangely or grotesquely; transform.” So consider the rather awkward and “hurts-so-good” yoga pose called the Pigeon Pose as a “transmogrifier” for your lower back and hip pain. No, really. Trust me.

pigeon
King Pigeon Pose

I hurt every dang day of my life. The location and extent of the pain changes, but I cannot remember a day without pain as of late. Bouncing out of bed is no longer an option. I am slow to move as I am stiff and it hurts to straighten up and walk in the mornings. Some days the pain is all over, some days it’s more pronounced in the neck and shoulders, others it’s the lower back and/or one leg or another. This is not meant to be a pity party, but more of an explanation, and what I do to relieve my pain. Continue reading “Curse the Pigeon Pose”

Fibromyalgia – A Real Pain in the Neck

Ten of the eighteen trigger points common with FMS are concentrated in the neck and shoulders, making neck pain a normal occurrence for fibro-sufferers.

I once spent over a year trying to diagnose some symptoms I was having. Living with fibromyalgia, it is sometimes difficult to differentiate FMS aches and pains from something different. I have never been one to go to the doctor much, and do believe we know our bodies best and we must be diligent in finding what works for ourselves. So when I know something is really wrong, it is up to me to find the right doctor to work with me for a diagnosis.

Continue reading “Fibromyalgia – A Real Pain in the Neck”

Fibromyalgia Awareness Day

Your Voice Matters

For those of us who live with fibromyalgia, we are painfully aware of it every day. But this year May 12 has been designated to educate others. The theme this year is “Your Voice Matters” to call attention to the fact that everyone has a say in education, awareness, and making changes to help those who suffer from chronic pain. fibro3

What it Is

As I described in an earlier post, extreme fatigue, sleeping issues, and that “I-just-got-run-over-by-a-Mack-truck” feeling are the most prevalent symptoms for me.  Other common symptoms of fibromyalgia include:
  • Constant dull ache on both sides of the body and above and below the waist
  • Tension headaches
  • Inability to concentrate on tasks
  • Irritable bowel syndrome
  • Depression

Fibromyalgia is the second most ailment affecting the musculoskeletal system after osteoporosis.  Source: http://www.ecarediary.com/Blog2713

Sounds great, huh?  Lucky me, as I have both!  Diagnosed with Fibromyalgia in 2000 and with Osteoporosis in 2015. I know and live with chronic pain, but try my best not to let it get me down or slow me down. And then there are all of the other weird ailments that get lumped in with this condition, for lack of any other explanation. There’s a very good list by Sophie at Fibro Diaries that lists 100 different symptoms. I have probably had most of them at one point.
fibro2

More Reading

So in the spirit of helping with awareness, here are some other websites and bloggers I like, that write about life with fibromyalgia:

  • Periwinkle Pursuits where Rene writes about life with fibromyalgia
  • Counting My Spoons where fellow fibro-warrior Julie writes to educate others on many health issues
  • Chronicles of Fibromyalgia where Leah shares her fibro journey and struggles
  • Dr. Murphree’s site has good information on the condition; listen to one of his conference calls
  • Read my earlier post of how I cope – healthy lifestyle choices are the best methods for me and I feel it when I make bad eating choices or have high stress levels

fibro1

My Voice Matters

Hopefully I have provided *a little* awareness on this “invisible” condition. So the next time I seem a little grumpy or am moving slowly, it’s probably because when I crawled out of bed and kicked fibromyalgia in the butt that morning, it kicked back.

Do you have any good resources for fibromyaglia or coping with chronic pain to share?

Cheers!

Cynthia