Easy Hobbies for the Chronically Ill

Even if your chronic illness is a life sentence, it doesn’t have to be a death sentence of isolation and loneliness.

Life with fibromyalgia and other chronic conditions can be lonely at times. Pain, exhaustion, and other symptoms easily lead to cancelling engagements, giving up hobbies, and social isolation. Your social calendar and life have a new normal. But something is missing. People want interactions and connections, something to do to pass the time. Binge-watching Netflix or reading your Facebook feed only goes so far. And having something easy to do can help distract from pain and find the social interactions again. Continue reading “Easy Hobbies for the Chronically Ill”

Best Kept Secret: WEGO Health Nominee

I use my blog and health advocacy role to shine a light on fibromyalgia and make this condition more visible.

I started blogging a few years ago to share my fibromyalgia journey in the hopes of encouraging, helping, or inspiring others. I try to maintain a positive attitude despite this sometimes debilitating condition. My blogging journey has been slow and not always steady due these limitations, so this nomination caught me completely off-guard. I am honored, thrilled, and grateful for being nominated for a 2018 WEGO Health Award for the “Best Kept Secret.” It truly gives validation to what I am trying to accomplish in my little corner of the blog-o-sphere and Twitter-verse.

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Fibromyalgia Symptom Round-up

With over 200 symptoms or co-morbidities, fibromyalgia symptoms can vary from person to person.

With 18 trigger points across the body, one of the most defining symptoms of Fibromyalgia Syndrome is widespread pain. It is also characterized by extreme fatigue, sleeping issues, headaches, and a myriad of other symptoms. It can be difficult at times to ascertain whether you have yet another weird symptom of fibromyalgia, or you truly have something else wrong. And the symptoms vary from one person to the next.

Research suggests that “the brain of a fibromyalgia patient amplifies pain signals” and  that it “is a complex condition whose definition and measurement extend far beyond charting patient-reported pain levels on a numeric scale.” It’s no wonder there are over 200 symptoms and/or co-morbidities that have been attributed to this syndrome. Continue reading “Fibromyalgia Symptom Round-up”

Cloudy with a Chance of Fibro Fog

Fibro fog manifests itself in different ways, including forgetfulness, difficulty remembering names or where you place an object.

One of the definitions of fog is “something that obscures and confuses a situation or someone’s thought processes.” If you are familiar with the symptoms of fibromyalgia, you might have heard the term “fibro fog” describing those periods where you can’t think right, and sometimes suffer memory loss or have difficulty concentrating. It is a very real thing for us fibrowarriors. I have experienced this feeling more times than I care to admit, and to this day my memory is not as good as it used to be.  Continue reading “Cloudy with a Chance of Fibro Fog”

Tech Tools for Life with a Chronic Illness

Technology is a tool people use to improve their lives.

Let’s face it. We’re lucky to get out of bed, get our hair done, and make it to work on time with the same color socks some days. Life with a chronic condition is challenging every single day. I fight fibromyalgia, what’s your superpower? So anything I can do to make my day/week more productive is alright by me.

“There was a time when a nail was high tech. There was a time when people had to be told how to use a telephone. Technology is just a tool. People use tools to improve their lives.” ~Tom Clancy

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Fibromyalgia Awareness Day

This year’s theme “Helping yourself…while helping others” reminds us that you feel better when you help others living with FMS.

May 12th each year has been designated as Fibromyalgia Awareness Day. This year’s theme “Helping yourself…while helping others” reminds us that you feel better when you help others living with FMS. Although I was diagnosed with it in 2000, I have just in the last few years started sharing my journey. I started my blog to share my strategies for life with fibromyalgia and to inspire others to seek healthy lifestyle changes and find joy in their lives, despite those challenges they might be facing. Continue reading “Fibromyalgia Awareness Day”

Business Travel with a Chronic Condition

The days are usually long. The rooms are usually cold. The food options aren’t the best. And sleeping in a strange bed without your pillow is never very fun.

Traveling for business requires different strategies than traveling for pleasure, because you can’t always modify your schedule and you don’t have a built-in support network of family to help lug your bags around. The days are usually long. The rooms are usually cold. The food options aren’t the best. And sleeping in a strange bed without your pillow is never very fun.

For many of my work trips I am traveling with some of my employees or co-workers and have vendors to meet. Not showing up to a session doesn’t always work for me, unless I am calling in dead. So I have crafted a few strategies that help me survive business travel while dealing with the chronic pain and fatigue I experience.

“Learning is experience. Everything else is just information.” ~ Albert Einstein

Continue reading “Business Travel with a Chronic Condition”