Fibromyalgia Awareness Day: Life with Fibromyalgia

May is Fibromyalgia Awareness Month and May 12th is Fibromyalgia Awareness Day, so this post is meant to do just that. Raise awareness. Give readers a little glimpse into what it is like to have this daily companion in your life.

While some may not understand what it is when you explain it, they can probably relate to the occasional sleepless nights or aches and pains. Fibrowarriors have these symptoms on most days.


One recent, restless night when I was experiencing a lot of pain and couldn’t sleep, so I jotted a few things down to describe Fibromyalgia. I couldn’t stand the sheets to touch me. My mind was racing. Sleep was evading me. I tried essential oils and pain relievers. After maybe 2 hours of sleep, I got up and went to work the next morning.

This is my life with fibromyalgia.

Never easy. Never predictable. Never fun.



F Fatigue, flare, forgetfulness

I Insomnia

B Brain fog, brain won’t stop racing

R Restlessness, Radiating pains

O Overactive, firing nerves

M Myofascial pain, Morning stiffness

Y Yearning to be pain-free and be my old self

A Anxiety

L Leg cramps, restlessness, and pain

G Gastro problems – IBS, nausea, diarrhea, constipation

I Itching

A Aching everywhere – bones, joints, and muscles


They say you never really understand someone until you’ve walked a mile in their shoes. So if you encounter someone with Fibromyalgia and you think they don’t look sick… Think back to the last time you had the flu and your body ached all over, or the last time you couldn’t sleep but still had to go to work the next day, or perhaps even when you forgot where you left your keys. And then imagine what it would be like to experience that some days, most days, or even every day.

Now you’re starting to get a glimpse of Fibromyalgia.

P.S. I don’t often like to take pictures of myself. These days I am usually tired and don’t feel “picture ready.” But since it’s also Mother’s Day today, I wanted to share some pictures of me with my mom and my kids. This is the face of Fibromyalgia.

Finding Joy with Fibromyalgia

Four simple steps to finding joy

Living with chronic condition like Fibromyalgia can be anything but joyful most days of the week. You are in pain, tired, and can be experiencing a myriad of other symptoms at any one time. And you often feel alone.

Then there’s the fact that you usually have to explain to people just what the heck Fibromyalgia Syndrome is and the fact that there is no good understanding of what causes it, thus there’s no cure as of yet. This alone can spin you into a life of social separation and loneliness.


It is widely believed that artist Frida Kahlo also would have been diagnosed with Fibromyalgia, if there had been that diagnosis during her time. Her art depicts chronic pain and her diaries reflect a life filled with physical and emotional pain. Yet, she continued to do what she loved, which was to paint, and toward the end of her life she turned her attention to capturing everyday existence.

“I used to think I was the strangest person in the world but then I thought there are so many people in the world, there must be someone just like me who feels bizarre and flawed in the same ways I do. I would imagine her, and imagine that she must be out there thinking of me, too. Well, I hope that if you are out there and read this and know that, yes, it’s true I’m here, and I’m just as strange as you.”
Frida Kahlo

The Two Fridas, by Frida Kahlo. Image captured at the Dallas Museum of Art, March 17, 2017.
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10 Things to Help You Combat Stress

April is Stress Awareness Month

April is Stress Awareness Month. Is it a coincidence that it coincides with one of the major stressors in American’s lives? (Tax Day) We all face every day stressors such as our commute, our jobs, paying bills, raising kids. But then there are those other things that compound and have longer lasting effects on you. Perhaps you have finals coming up or a work deadline or family troubles or maybe you’re battling a chronic condition or illness. Or perhaps you have a combination of many stressors in your life.

Stress can be positive – it’s what activates your fight or flight mechanism, or helps you to meet a deadline – or negative. It’s the negative stress that has a detrimental impact on your health and can show up in many ways – over/under eating, not sleeping, acne, physical ailments like stomach or heart issues, and flares of chronic conditions like fibromyalgia. Learning to cope with these burdens so that they don’t build up can make a huge difference in your health.

Photo by energepic.com on Pexels.com

It has been linked to a wide range of health issues, including mood, sleep, and appetite problems — and yes, even heart disease.

Wellness Magazine
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10 Things to Inspire You This Month

10 ways to unplug and recharge

Lately I have had a difficult time writing new blog posts. I am feeling overwhelmed, exhausted, had a flare-up of my fibromyalgia, and am just lacking the creative inspiration and desire to research and write a post. And that’s OK by me.

We all face times of uncertainty in our lives. We all need to take a step back at times and do less. For this month, I am giving you 10 ways to unplug and recharge. And the great thing is this list applies to those with or without a chronic illness, so I hope this gives you some ideas to find time for YOU.

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The Other “F” Word

I would prefer my “F” words include Fabulous, Fearless, and Fun.

I was diagnosed with Fibromyalgia in 2000 and have said/thought many a curse word since that time. Fibromyalgia. Fibro. Fibro-flare. Flare. FMS. Fatigue. Fog. Frustration. Failure.  All of these have become the other “F” words  to me. I try to live by the power of positive thinking (hence, the name of my blog), but until you live a day in my shoes it may be hard to understand why even sometimes it is easier to smile and put on a happy face rather than truly answer the question of “How are you?” Because trust me, you don’t want to hear about how I am tired, hurt all over, didn’t sleep last night, and oftentimes feel like a failure because I can’t do the things I want to do.

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Diagnosing Chronic Pain

“Doctors don’t know what causes fibromyalgia, but it most likely involves a variety of factors working together.”

Here are some ugly truths: Women and men experience pain differently. Doctors are less likely to treat women’s pain. Health issues that disproportionately affect women are not studied as much as those affecting men. It can take women multiple visits and sometimes years to diagnose their medical issues and chronic illnesses. And when painful conditions like Endometriosis and Fibromyalgia don’t have a simple test for diagnosing, those visits and months and years can prove both emotionally and physically draining when you’re already in pain and still having to fight for a diagnosis.

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6 Ways to Cope with Stress when you Have a Chronic Illness

Chronic stress can cause extreme duress on the fibro body and your adrenal system.

Managing my fibromyalgia is a careful balancing act of self-care. This involves eating healthy, getting adequate sleep, working out, and taking time for me. Living with fibromyalgia means that normal, every day stressors can place an additional hardship on the fibro body. So when you are faced with an extended period of stress – bad flare or other health crisis, work deadlines, family emergencies, or simply just getting through the holidays – you can place an extreme amount of duress on your body and your adrenal system.

“Adrenaline is a hormone secreted by the adrenal glands, especially in conditions of stress, increasing rates of blood circulation, breathing, and carbohydrate metabolism and preparing muscles for exertion.”

You can feel this when your heart starts to race or your hands or body sweats. Adrenaline is also responsible for that fight-or-flight mechanism that can give people extraordinary strength in times of crisis. And an over-exposure to the stress hormones can tamper with your overall well-being.

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