The definition of invisible is “unable to be seen; not visible to the naked eye.” Fibromyalgia is often called an invisible condition because people suffering from it don’t look sick. But we feel it. Marked by widespread pain and fatigue, sleeping issues, and “fibrofog,” many people with this condition put on their happy face and go about their day, all the while suffering in silence. We call ourselves FibroWarriors.
Every day is Awareness Day for those who suffer from fibromyalgia.
Every year May 12th has been designated as “Fibromyalgia Awareness Day” to shine a light on this invisible illness. Most of us who suffer from this chronic condition feel that every day is our awareness day, as we often have to explain what it is to people. Trust me when I say it is more than what you see in the pharmaceutical commercials on TV.
I write a lot about my fibromyalgia and chronic pain, but long before I was diagnosed with those issues I suffered a different kind of chronic pain. And it was the first of several times I have had to convince doctors that there was something wrong with me. Really wrong with me. Endometriosis is somewhat of a hidden disease, since it coincides with a woman’s monthly menstrual cycle and will often be written off as severe PMS or dysmenorrhea. But here is the definition, from the Office of Women’s Health:
“Endometriosis happens when the lining of the uterus (womb) grows outside of the uterus. It may affect more than 11% of American women between 15 and 44.1 It is especially common among women in their 30s and 40s.” Continue reading “Endometriosis Awareness Day”
It’s like a turtle trying to run in peanut butter.
Fibro Fog. Brain Fog. Senior Moments.
People who live with Fibromyalgia (FMS) refer to their Brain Fog moments as “Fibro Fog.” This common symptom is characterized by short-term memory loss, cognitive issues, difficulties concentrating or retaining information, transposing letters/numbers, just to name a few.
I find my symptoms growing worse as I get older. I am transposing numbers all of the time. It takes me longer to do simple tasks sometimes as a result. And it is definitely harder for me to remember something someone told me a few minutes ago. Just ask my family. (That’s why at work I take notes in a searchable online notebook (OneNote) if I will have to remember something later.) Continue reading “Fibro Fog Defined”
Your Voice Matters
For those of us who live with fibromyalgia, we are painfully aware of it every day. But May 12 has been designated to educate others. The theme this year is “Your Voice Matters” to call attention to the fact that everyone has a say in education, awareness, and making changes to help those who suffer from chronic pain.
What it Is
- Constant dull ache on both sides of the body and above and below the waist
- Tension headaches
- Inability to concentrate on tasks
- Irritable bowel syndrome
Fibromyalgia is the second most ailment affecting the musculoskeletal system after osteoporosis. Source: http://www.ecarediary.com/Blog2713
So in the spirit of helping with awareness, here are a few other websites and bloggers I follow that write about life with fibromyalgia:
- FibroBloggerDirectory where Lee has a whole directory of others writing about their experience and her site is Fibro Files
- Chronicles of Fibromyalgia where Leah shares her fibro journey and struggles
- Reclaiming Hope where Terri writes about thriving despite having Fibromyalgia
- I Tripped Over a Stone where Kim shares her life with Fibromyalgia
- Counting My Spoons where fellow fibro-warrior Julie writes to educate others on many health issues
- Dr. Murphree’s site has good information on the condition; listen to one of his conference calls
- Read my earlier post of how I cope – healthy lifestyle choices are the best methods for me and I feel it when I make bad eating choices or have high stress levels
My Voice Matters
Hopefully I have provided *a little* awareness on this “invisible” condition. So the next time I seem a little grumpy or am moving slowly, it’s probably because when I crawled out of bed and kicked fibromyalgia in the butt that morning, it kicked back.
Do you have any good resources for fibromyaglia or coping with chronic pain to share?