Chronic physical pain often also creates emotional suffering. Seven steps to deal with the loneliness and isolation of chronic pain.
You know the drill. You are in pain and suffering, often silently. Because of your condition you are in pain quite often and talking about it can be construed as “complaining,” and after a while can fall on deaf ears. You might be in deep despair because the pain is too much. Your life as you knew it has come to a halt. Exhaustion, stress, lack of sleep, and pain. That is the life you know now.
Sure, your friends and family know there’s something wrong with you. But do they really know what you’re going through? And even so, do they really want to hear about it? Again. And after you’ve declined a few invitations because you weren’t quite feeling up to going out and being social, the invitations just stop coming. Continue reading “Combating the Loneliness of Chronic Pain”
In my professional career, I have never really been a specialist, but I do consider myself good at a variety of things. And so it is in my personal hobbies, I have various things I truly enjoy, but no one thing I have perfected. I dabble in writing this blog, photography, painting rocks, volunteering, and all these things I do give me joy, fulfillment, and serenity in my life and help me be the best version of me. I love finding inspiration in every day life!
“The meaning of life is to find your gift. The purpose of life is to give it away.”
~ Pablo Picasso
But one thing I have found that I both enjoy and am fairly good at is strategy development and plan execution. And so it is that I joined the board of a local non-profit last year, to help them succeed in fulfilling their mission, while helping to develop a strategic plan and stay focused on plan execution. This is the gift I have developed that I am able to give away. #lovewhatyoudo
This post is to pay homage to my readers, visitors, and followers, as my little blog reached a milestone today: 100 followers! I know that doesn’t seem like much in the blogging world, but considering the fact that I don’t follow a regular schedule and don’t monetize the blog with advertisers, I am pretty proud of that number. I want to thank each and every reader, visitor, follower for keeping me motivated to continue to post and helping me reach that goal. I appreciate the likes and comments you leave for me, and I am truly grateful! So a bigTHANK YOU!
Why I Blog
I started my blog almost two years ago as a way to share my love of photography (hence the blog name – PhotoBaugh – my last name is prounouced “Bow-man” so it’s a rhyme), things that inspire me, and tips about living with fibromyalgia. In that time I haven’t spent as much time with the camera as I would have liked due to other commitments (my day job and my board memberships), but those days do come. So I mostly share things that work for me to live a healthy, inspired life while dealing with chronic pain, and hope that I can help at least one person with each post.
“As one person I cannot change the world, but I can change the world of one person.” ~ Paul Shane Spear
Blogging Tips I Have Learned
Consistency is Key: While I am not the most consistent, I have found my views and follows go up considerably when I post regularly. Life has gotten in the way a few times for me, as I have written about (here and here), but I am still working towards my goal of regular content.
Be Authentic: Life is not all perfectly posed pictures of travel to glorious places or sipping lattes. My best read post has been the post where I talked about my blogging journey and my screw-ups. 🙂 (I started the WordPress fundamentals course that day!) Write about what you know and what makes you happy!
I truly believe in using food, exercise, and things from nature to heal the body.
Finally, I have had some pain relief! If you have been following my story the last several months, you know I have been suffering with some acute pain. I am happy to report that I have not had numbness or pain in my arm now for three whole weeks!! Zip. Zilch. Nada. That’s not to say all is well or I have any answers. Really, more questions. But for now I am enjoying the long-overdue break from my neck/shoulder/arm pain. 🙂
“Relief is a wonderful emotion, highly underrated. In fact I prefer it to elation or joy. Relief lets the air out of the Tire of Pain.” ~ Adriana Trigiani
If you have read my last few posts, you know I have spent the last 5 months in and out of doctors spending tons of money on tests to diagnose some chronic and acute pain I thought was associated with a past neck surgery. The tests find little to nothing, so now I am wondering if this is just new manifestations of my fibromyalgia. The last few days I had decided it is time to regroup and try a more holistic approach. Reading this blog post from Back Pain Blog UK and the linked article this morning just confirms that for me. Check her blog and all the other great bloggers on FibroBloggerDirectory.com.
The Secret Life of Pain is an article in New York Times which a friend sent me to read, and I just felt I had to share with my pain pals.
The article starts off by telling you about the double life that David Roberts, a former academic physicist and diplomat who lives and works in New York City.
He goes on to explain how he hid is chronic pain in many ways, one being that he had an orthotic cushion inside his briefcase and would make a joke out of sitting on the briefcase. He also wore a corset and heat wrap which he disguised under his tailored suit. He had become adept at hiding his back pain from everyone except his family.
He would even sneak upstairs when working at conferences to get some pain relief from his wife who would work on his back. Eventually he had…
I saw this graphic on twitter from Dr. Margare Aranda and thought this pretty much sums up my #currentsituation so I wanted share. Sometimes you really have to fight for your diagnosis.
I wrote about trying to get a diagnosis for this chronic pain I have had off and on for a few years now in my last very lengthy blog post. Tests, procedures, scans, second opinions, third opinions. I have one more appointment tomorrow morning. My binder is ready with all of my recent exams. My fingers are crossed. And I have hope.
“At the end of the day all you need is hope and strength. Hope that it will get better, and strength to hold on until it does.” ~ Jazmin Whitmore
I think for many people suffering in pain, just knowing they aren’t crazy and that there is some logical, medical explanation for what they are experiencing gives a profound sense of relief and peace of mind. Getting to the correct diagnosis should get you on the proper road to recovery. As Gandhi said, it’s 3/4 of the remedy!
Have you had challenges getting a chronic condition diagnosed? Do you have any lessons learned that you can share?