Ten of the eighteen trigger points common with FMS are concentrated in the neck and shoulders, making neck pain a normal occurrence for fibro-sufferers.
I once spent over a year trying to diagnose some symptoms I was having. Living with fibromyalgia, it is sometimes difficult to differentiate FMS aches and pains from something different. I have never been one to go to the doctor much, and do believe we know our bodies best and we must be diligent in finding what works for ourselves. So when I know something is really wrong, it is up to me to find the right doctor to work with me for a diagnosis.
“Done is better than perfect,” according to Sheryl Sandberg in her book Lean In (one of many unread books on my list. More on that another time). It’s a philosophy I have tried to adopt this past year, as I have come to these realizations:
I am no longer Superwoman
I can’t do everything
The things I do manage to do are far from perfect
For a Type A perfectionist, that was a bitter pill to swallow. These realizations come after my years of suffering from Fibromyalgia. I find as I get older it is harder to recover from a “flare” and I really need to make myself a priority if I am going to minimize the number and lengths of flares and remain pain-free.
For those of us who live with fibromyalgia, we are painfully aware of it everyday. But May 12 has been designated to educate others. The theme this year is “Your Voice Matters” to call attention to the fact that everyone has a say in education, awareness, and making changes to help those who suffer from chronic pain.
What it Is
As I described in an earlier post, extreme fatigue, sleeping issues, and that “I-just-got-run-over-by-a-Mack-truck” feeling are the most prevalent symptoms for me. Other common symptoms of fibromyalgia include:
Constant dull ache on both sides of the body and above and below the waist
Sounds great, huh? Lucky me, as I have both! Diagnosed with Fibromyalgia in 2000 and with Osteoporosis in 2015. I know and live with chronic pain, but try my best not to let it get me down or slow me down. And then there are all of the other weird ailments that get lumped in with this condition, for lack of any other explanation. Here’s a list of 100 Symptoms of Fibromyalgia. I have probably had most of them at one point.
So in the spirit of helping with awareness, here are a few other websites and bloggers I follow that write about life with fibromyalgia:
Counting My Spoons where fellow fibro-warrior Julie writes to educate others on many health issues
Dr. Murphree’s site has good information on the condition; listen to one of his conference calls
Read my earlier post of how I cope – healthy lifestyle choices are the best methods for me and I feel it when I make bad eating choices or have high stress levels
My Voice Matters
Hopefully I have provided *a little* awareness on this “invisible” condition. So the next time I seem a little grumpy or am moving slowly, it’s probably because when I crawled out of bed and kicked fibromyalgia in the butt that morning, it kicked back.
Do you have any good resources for fibromyaglia or coping with chronic pain to share?
This is my very first post. I have been toying with this idea of blogging for quite some time now, but really haven’t found a focus. I have a variety of interests, but really don’t have enough to say to devote an entire blog to any one of them. So this blog is going to likely be a random collection of things for now, while I find my way.
A bit about me and some of the things you may see here on my blog. I am married to an awesome and ever patient husband. We have two kids who I adore and two dogs who are a bit crazy. I love beauty and fashion, but there are so many awesome bloggers out there that I follow that have far better taste than I have. My family and I love to travel, and try to take one or two big trips a year. I love to eat healthy and take care of myself, as I suffer from fibromyalgia and control it with healthy habits. I work in technology and government, and love to read the insights from leadership gurus such as John Maxwell, Jack Welch, and Dr. John Izzo. I try to learn something new everyday!
If you follow me on twitter, most of my tweets are related to technology and leadership. Follow @photobaugh
If you follow me on Instagram, most of my pics are of food and my travels.